 |
| At DeVos all hooked up with his arm immobilized with the IV |
We went home from the hospital on Monday. It was so good to be home! Poor C was having a hard time not having Mom around. On Sunday, he looked at me while they were getting ready to leave and said, "Mom, when are ALL of the Daron's going home?" Broke my heart. So, it was good to get home with everyone.
On Wednesday, we went to the pediatrician's office. M was doing well. He had maintained his discharge weight. His heart sounded good.
On Thursday evening, he refused to nurse. He cried and cried. At 11, I finally convinced him to take an ounce from a bottle. Then, he was back awake at 1...crying and crying. He finally nursed a little at 4:30 and went to sleep.
By 9 AM, he still hadn't eaten again. So, I called the lactation consultant and discussed the situation with her. She gave me some tips and tricks to try. They worked. He drank a bit from a bottle and nursed for 5 minutes and went to sleep. At 3, I decided something was seriously wrong with the little guy. Starting at noon, he'd wake up for a bit, cry, and fall back asleep but didn't eat. I couldn't convince him to nurse or bottle feed. By 3, his cries were weak and he was difficult to rouse. I called the pediatrician. He said to get to the ER. So, I called Jut home from work and we headed to the ER. It was about 4.
The ER was busy. They got us to a room. We saw the doctor. The notes on M's heart problems following birth scared everyone. Plus, his initial weigh in had him losing 25% of his birth weight. They decided that was inaccurate and reweighed him but he had still lost too much weight. The dr came in and said that we needed to take him to a children's hospital and asked which one we'd like to go to. We chose DeVos. So, he started getting the transfer stuff organized around 8. We prepared to leave because he'd told us that we'd be driving M there. Then, things started getting crazy. The nurse came in and started prepping him for an IV...lab was in to take his blood...there was talk of a catheter. We mentioned driving and the nurse was like..."no...he's going to GR with a medical team." Jut asked if I'd be able to go along with him and the reply was "if they take the ambulance". We then found out that they were considering airlifting him and things got a lot more scary. Something must be seriously wrong if they were going to airlift him.
 |
| Looking much better on Sunday |
They decided that he'd be fine to wait for an ambulance. So, we waited...and waited and waited. He was given antibiotics in case he had an infection. They were pushing fluids through his IV. The nursing staff did a great job. The phleb that drew his blood was shaking like crazy when she finished...but she got him on the first poke. They got the IV started on the first jab. It was awful to watch but they did a really great job with him. M finally took an ounce of formula shortly before we left. The ambulance didn't get to the hospital until midnight. It had to come from Lansing because all the local ones were busy...(we were the fourth transfer of the evening.) We got into GR at 2 AM. It took them 6 hours to get us to there once they decided that we should be transferred. The thought of the helicopter ride suddenly made much more sense.
The rig wouldn't 'fit' into the ambulance bay in the children's wing...and so they parked at the regular ER entrance and a security guard took us through the hospital to get over to the children's hospital. I was 1 week post C-section and I was trying to keep up with a security guard and 2 EMTs rushing through a maze of corridors. They should have put me on the stretcher with M!
We were met by a team of drs and a nurse. They were so friendly and caring. It was great. Although, I am glad M had only been around for 7 days...I had to give his life story to numerous drs, fellows and interns as they tried to piece everything together. M drank another 1.5 ozs of formula. He was already looking better as they had been pumping him full of fluids since they got his IV started.
It was 4 AM but the time we were finished with the drs and nurses. M had settled down and we sat down to rest for the rest of the night.
By noon, they had turned down his IV and stopped the antibiotics. He was taking a bottle every 2 hours...he wasn't drinking much but he was at least eating again.
The dr told us that babies do this sometimes. Heart babies get in an arrhythmia and stop eating. Her guess was that he got dehydrated and his heart got a bit off and he went down hill quickly because as soon as he was hydrated, everything went back to 'normal'. But, it could have been the other way too...his heart got wonky and so he stopped eating and got dehydrated. It was crazy how quickly it happened and how quickly he went downhill.
The discharge instructions were to feed him every 2 hours round the clock and follow up with our pediatrician. We were discharged Sunday at noon. It was a crazy weekend! We headed to Holland to pick up the other 3, as they were enjoying some time with friends.
Just a side note: It took 3 weeks before he'd pick nursing back up again...and truthfully, I liked bottle feeding him because I knew how much he was eating...I still worry at 6 weeks old that he's eating enough (and he's over 12 lbs now)